November is National Epilepsy Awareness Month

national-epilepsy-monthKeystone Behavioral Pediatrics’ Neuropsychological Assessment Clinic, led by co-directors Rea Anne A. Romero, Ph.D., licensed psychologist, and Rebecca J. Penna, Ph.D., NCSP, neuropsychologist and clinical psychologist, provides comprehensive evaluation of brain functions and processes. The neuropsychological approach is particularly useful for individuals who have experienced a brain injury or other medical conditions that impact the central nervous system, such as epilepsy, as well as other complex clinical conditions that impact the way a person thinks and learns. Following the assessment, a profile of the individual’s processing strengths and needs is developed, which guides treatment, rehabilitation and educational planning.

Parents of children with seizures have a special role.

The national Epilepsy Foundation acknowledges the following critical roles that parents of children with seizures play in their children’s lives:

  1. You are parents and the primary caregivers of your young children. You are the one giving information to the health care team and the primary one working with schools, camps, or other community groups. You are staying up at night worrying, or caring for your child during and after seizures. You want them to stay safe, but may have to balance this with how to let them be kids, and develop independence.
  2. You are a manager. You need to manage your young child’s epilepsy. As your child grows, you need to teach him or her how to manage his epilepsy. If your adult child can’t manage their epilepsy on their own, you may need to continue in the manager role or find someone else or an agency (for example a group home or agency overseeing your child’s care) to manage their care.
  3. You are an advocate. You may have to advocate for your child to get the care they need, to get an appropriate education and any necessary accommodations, and to have their rights respected.
  4. You are an educator. You have to educate so many people (as well as yourself) about epilepsy and how to treat and respond to your child. You want your child to be treated just like anyone else, but this may take work over the years.
  5. You are also a “patient.” Epilepsy affects the whole family – the person with seizures, parents, siblings, grandparents, and more. How it affects you will be different than how it affects the child, other children in the family, or your parents. But it will affect you. As a patient, you’ll have needs too and would benefit from information and support to help you.

Epilepsy and seizures are tough for children and families to bear. It might feel like more than you can handle on your own. Luckily, you don’t have to. Keystone can assess and evaluate your child to provide an individualized treatment and education planning.

Cognitive behavioral therapy has become a successful way to help people through a variety of problems. It has been shown to reduce depression, anxiety, or anger (or more than one of these) in some people with epilepsy. Cognitive behavioral therapy is grounded in the belief that your thoughts guide your feelings and actions. To help your child manage feelings and change actions, we help your child first focus on changing thinking patterns. When your child learns how to focus on her own thoughts instead of outside events or other people, she can have more control over her progress and a greater chance of improving her life.

In many cases, epilepsy co-occurs with other developmental and behavioral issues, for example, autism. We can also provide specific recommendations that relate to educational placement and instructional strategies that can be shared with your child or adolescent’s school. This can include recommendations for testing accommodations (e.g., SAT) if indicated.

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